May 1st, 2009

on (dis)ableism

badd02 So I’ve been reading the blogs for Blogging Against Disablism Day 2009 and I’m overwhelmed with the daily violences enacted through ableism. So much of ableism seems to be connected to a capitalistic understanding of the body, i.e. the body is a tool for generating capital in the world as constructed by temporarily able bodied people. There’s no understanding or room for folks who challenge the very structure of our social structure with the ways they move (or don’t) through the world.

I’ve been trying to imagine a different world, one in which “work” was not assumed to be a requirement for anyone. Instead of thinking in terms of what people can do, it would be about how people care for one another and the earth. How can we each do a bit to care for each other and help sustain each other and help sustain the things that help sustain us (plants, animals, ecosystems, etc.)? A radical decentering of humans is necessary, and even how we understand humanity has to shift too right?

Critiques of  temporarily able bodied or nondisabled bodied folks fears of disability, particularly drugs and disability, really reached me. I wonder about my own problematic beliefs about drugs and my desire not to use them, my own belief in an evil consumerist big pharma selling sickness to the world. And I wonder if this might be a both/and. That I am both ableist in my thinking that I’m a wimp for needing tylenol for cramps every month but biomedical interests need some serious critique for testing in Africa, patenting  plant compounds that indigenous communities have been using for centuries, and over medicating the world. Isn’t some disability the by product of oppressive capitalism and other isms, like racism, sexism, and ageism?

As today was also May Day, Labor Day, International Workers’ Rights Day, I was thinking about the connections between the two and how these blog communities seem so segregated. Race is rarely mentioned in these disability blogs. Class, gender, and even sexuality come through more clearly than race. Yet if we investigate, we see that most of these bloggers are white. Most of these bloggers live in the US and UK. Race matters. This always makes me wonder.

I have a lot of people in my family with disabilities, though none of them would consider themselves disabled. In talking with another radical woman of color, it seems that disability is so the “norm” in our communities, it’s often not marked as an identity unto itself. I often wonder about what a release it might be for women of color to see disability as a framework that intersects with race and gender, to not always feel the need to keep fighting, even when it hurts, to let go of the ways that we as cis and trans women of color in particular, have taken up ableism in ways that reproduce harm to ourselves and the communities we “work” so hard and care for. Why does disability mostly look white?

And while it seems so necessary, to bring these movements and experiences together, to use an intersectional lens, I think it’s so important that we don’t flatten out difference when we look for similarities. I think we are so use to ticking off that ever expanding list of race, sex, class, gender, sexuality, age, dis/ability, indigeniety, etc. we forget that intersection does not necessarily mean equal or parallel. While there may be no hierarchy of oppression, I think that there are ways in which our tendency to compare racism to ableism to sexism to homophobia can make us miss the nuances and the unique ways each of those plays out in the unique constellation of individual lives.

This is why I’m so excited to be a part of this blog community. I think this is proving to be a space where we all see the situatedness of our analysis and yet we still reach for each other and understand the value of each others’ standpoint. I’m ever hopeful these days and I thank you all for contributing to my optimism.

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4 comments!!!

  1. admin says:

    beautiful post moya. especially looking at the intersection of race and dis ability.
    it reminds me of this convo i was having a couple of months ago with a friend who runs a refugee school and basically told all the teachers that if they took sick leave for menstrual cramps they needed to have a doctors note because hey! menstrual cramps arent that bad! stop exxagerating!
    and i was like: ummm….when i apply for a job i normally have to put on the application that i will probably need to take two days off every month because ‘cramps’ doesnt begin to describe the level of pain that i am in during the whole menses thing. i cant walk. i cant think. i cant sit up.
    and then she said: oh yeah one of the men tried to explain to me that i didnt understand sudanese women and menses…and i wonder if i he was talking about fgm and how that would affect ‘the cramps’….but i *know* that the worst it could be is a lil bit of back ache and tiredness…
    and so this lil convo leaves me wondering about ways that we deny womens pain by insisting that they explain their pain, their dis ability to us in ways that *we* can understand.
    i am also thinking about being preggers. and how in pregnancy you *supposed* to be full energy and happy and productive. and i wasnt. i lost 75-80 percent of my hearing. the back pain was excruciating. i was so tired and tired and tired. and no one took it seriously. how i obviously just didnt have the right frame of mind. how i obviously was a whiner.
    i dont know.
    but it does seem like our society refuses to listen to pain. refuses to acknowledge that the standard ideal of the human body’s functioning is a myth.
    its like we are not allowed a diversity of body states. of abilities. of perceptions. of pain.
    what is going on?
    i definitely think its linked capitalism and the fact that my body is supposed to be a means to production. that that is my primary worthy function on this earth.
    and i am with you on the caretaking tip. i was just writng about this earlier tonight…centering care taking in community…and the ways that bodies on the margins of ability speak to that need for a reformulation of what is valuable in human beings…
    thank you moya
    love maia

  2. SA says:

    Interesting post. Your point about drugs is particularly interesting.

    Drugs are a lot like food, So necessary for life for so many - yet the way they are produced, marketed and sold destroys lives.

  3. moya says:

    thank you! loved your post at guerrilla mama medicine on this! It makes me think of radical ways that the”nondisabled” can stop colluding with ableism by sharing these stories and starting work stoppages and slow downs connected to the ridiculous demands that bodies are expected to meet.

    good news here

  4. [...] disabled young people’s collective retreat we had earlier this year. this is excerpted from raven’s eye: …I have a lot of people in my family with disabilities, though none of them would consider [...]

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